The book “One” by Kathryn Otoshi reminds readers that everybody counts, and is a great tool for facilitating conversations with kids about inclusion, acceptance & courage. The story highlights the message that when one person is brave and confident enough to stand up to a bully, their actions can give others the courage to stand up along […]
Posts with the Proactive parenting tag
Fear was holding me back from giving my kids an awesome summer
When Lily was first born, one of the things I struggled with the most was approaching a child care center and asking if she could attend. I wrote a post about it here, and what this experience taught me about bravely asking bold questions. These last few months I’ve been struggling with something very similar. […]
Big Medical Tests: When kids have to be brave beyond their years
In early November, time came for Lily’s yearly spine and brain MRI. This test starts to stress me out months before it happens. It’s an hour and a half long (so so so long for a little kid), and each time we hope for the best (all is stable), while knowing that one of these […]
10 Lessons I learned when my daughter didn’t meet the goals we set in therapy
Ever have one of those days when things become unexpectedly clear? This summer I felt perpetually uneasy. It’s hard to explain, but I’ve been second guessing myself, worrying more than normal… just simply out of sorts. I want to do what is right for my family, what is right for Lily’s development, what is right for my career, […]
3 Signs You Might be an Ability Hacker
Sometimes when I tell people the name of my blog, they look at me sideways with a slightly puzzled expression. Eventually, the question comes: “What exactly is an Ability Hacker?” I decided it’s high time for me to put pen to paper (or fingers to keys as the case may be) to put together a formal definition. […]
A Summer of (too many) big ideas
I often find myself wondering how much I should push Lily with extra therapies, new skills, and new equipment versus how much I should step back and let her simply enjoy being a kid. I want to help her grow stronger and gain more independence, but not in a way that makes her everyday life […]
What does a peanut have to do with special needs parenting?
When tackling a herculean task, the people I work with will sometimes say “we just need to push the peanut forward.” I know, it’s a strange phrase, but I love the concept. What the saying means is that when a challenge is overwhelmingly large, and it feels like ultimate success may not ever be achieved, we should focus […]
6 Tips for Having a Sensory Friendly 4th of July
My daughter tends to be sensitive to loud noises, so I was looking for tips on how to help her handle some of the more ear-piercing 4th of July festivities. I came across this great article that outlines 6 tips for having a sensory friendly 4th of July. The author covers tips for preparing your child […]
3 Lessons I learned about bravely asking bold questions
One of the tasks I found the most difficult when I was pregnant with my daughter was calling a daycare center to inquire about her attending. I simply could NOT make myself pick up the phone and dial. I delayed… and delayed… and delayed. At that time, it felt like the many pieces of me were […]
Supercharged Hand Therapy… Constraint!
The absolute BEST thing we’ve ever done for Lily’s left hand is constraint therapy. When I first heard the details of the program, it scared me a bit, and made me feel like a meanie to consider doing it to my child. However, when I thought about it in the context of eye patching, which […]
5 ways to build hand strength and fine motor skills with everyday objects and activities
When my daughter passed the 6 month mark, I noticed that she kept her left hand in a fist most of the time. All the reading I did told me we should be concerned, so my insides kept knotting up as I obsessively watched her to determine whether her actions were typical or atypical. A few weeks later, […]
A simple fix for helping kids clear their place at the table
One of the things I feel very strongly about is that kids with limited mobility should be required to do as much as possible for themselves. This past week, I was trying to figure out how I could enable Lily to clear her own place at the table when I remembered a microwave cart we used to use for […]
Spring opens the door to playing outside – find an accessible playground near you!
This past weekend I sat outside under the bright sun and spring flowers, and drew pictures on the sidewalk with my kids. There is something magical about playing outside in the bright warmth after a long, gray, cold winter. I can’t seem to soak up enough of the sun. When I think about fun outdoor spring […]
Eight Fun Easter “Hacks” for Kids with a Variety of Abilities
Easter egg hunts and traditional egg coloring can be a challenge for kids with differing abilities. However, with a few tweaks, there are many ways to include kids with a variety of ability levels in the fun. Challenges: Wheelchairs & walkers: Difficult to navigate grassy terrain, and often can’t easily bend down and pick up eggs. Blind or low vision: Can’t locate eggs […]
When has a story changed you?
Disability is a subject on which it is difficult to get people to engage. No one dreams of or hopes for disability to affect their life, so it’s logical that when the subject comes up people have the tendency to shy away or change the subject. It’s simply an uncomfortable topic when you aren’t neck deep in […]
Challenge: Get Connected. Feel Empowered.
I am going to tell you a story about an important lesson I learned, and how that lesson helps me today. Story: As a single young adult, I had a very hard time finding a church that made me feel at home. No church compared to the one I attended as a child. When I walked […]
Building your “Medical Gut”
A few years ago, soon after starting a new job, I was asked to answer an important business question by a senior leader in the organization. The problem: I didn’t have the right data on hand to answer the question because the report had not yet arrived from the supplier. My manager nonchalantly told me, “Just go with your gut. What does it tell you?” […]