How Spina Bifida influences how I dress & shop for my daughter

At the beginning of summer, I realized my son had grown out of his 18-24 month clothes, and it was time to upgrade to the next size. Shopping for him was surreal. What is this uber-easy experience of walking into a store, looking for a size, seeing something I like, and… buying it? Good-ness. SO. SIMPLE. When gifting […]

Where to buy shoes when your feet are two different sizes

One of the questions I’ve been asked a few times is whether I’ve heard of any resources for people who need two differently sized shoes due to two differently sized feet. I’d heard rumor that Nordstrom will sell two different sizes shoes, so I went investigating. And guess what? It’s TRUE! And you know what? […]

Medical Supply Hack: Stand up antiseptic wipes with a simple package fold (keep them sterile)

Now that we are three and a half years into being parents of a child with extra needs, medical procedures are a normal part of our daily routine. At first, however, they seemed overwhelming. Many things contributed to moving these medical tasks from the “OMG how am I ever going to do this?” column to the “It’s […]

Carrying an Easter Basket for Kids Who Use Walkers

Last week I posted about 8 Fun Easter Hacks for Kids with Varying Abilities. Since then, I found another one! During an Easter egg hunt, children using walkers can carry their own Easter basket by using a Think King Hook. We use the Think King hooks on our strollers for holding all sorts of things, including hanging […]

Allowing children to be children, regardless of mobility

I crossed paths with the question “when is the right time for a mobility device?” multiple times today. It’s an interesting question. When really is the right time? Should we follow a “typical” timeline? Should we listen to our mommy gut? Should we be the catalyst for getting new equipment? Should we assume our medical team and therapists […]

Before I Met Her

I read an article today posted by themighty.com (My Child’s Disability is Not a Tragedy) which threw me back to my daughter’s prenatal diagnosis of Spina Bifida when I was 20 weeks pregnant. What I realized while reading this article was at THAT moment I DID believe it was a tragedy. It felt like a tragedy. It hurt. It […]

Bowling: A surprisingly inclusive sport

On Friday afternoon, Lily and my husband played hooky to celebrate my brother-in-law’s birthday. We went Bowling! Old school. It. Was. Seriously. Awesome. Why? Bowling is actually quite fun. The local place, while a bit run down, was super friendly. They weren’t busy, so they provided an exclusive toddler lane FREE of charge! Everyone could participate.

A solution for shopping with an unstable sitter (baby or toddler)

We have family coming to visit, so I did a BIG grocery shopping trip today with my son who is 3 months old. As I wedged red bell peppers and pints of blueberries around his carseat, precariously perched salad mix on a tower of condiments, and stashed chicken breast on the ledge under the cart between […]